This Sucks

Sometimes, I’d think of my blog and feel all wistful, remembering the days of writing daily and having so much to say.  I have thought about coming back but for the most part, with the kids being older it’s so hard to get cute pictures like when they were babies.  We’re always doing something, the […]

Ryan Update

I’ve reverted back to blogging it seems when it comes to Ryan news… it’s easier to share the longer updates here rather than on Facebook or in individual messages to everyone who asks. Ryan had appointments today for more testing, and on the way he began crying in the car because his head hurt.  Anyone […]

It Never Ends…

I posted about this earlier in the week on Facebook, but here’s a recap for those not there- Ryan’s final pathology results came in from when they removed his eye and there were some retinoblastoma cells in some nerve (not the optic). They are having him go back on Friday morning for more testing (lumbar […]

Best Day Ever.

I did a lot of waffling with this enucleation.  I really wanted to save Ryan’s eye.  But once he said he wanted it out, and then Dr. Shields said get it out, I figured we were making the right choice. And after the call we received from pathology today, I’m even more sure we did […]

Tough Guy

Ryan came home from his surgery on Monday and was groggy from the anesthesia. They’d dilated his other eye to do a thorough exam while he was under, so it was sensitive to the light.  He was super hungry, and wanted to eat.  He fell asleep a little early, but said he wasn’t in any […]

Last Time

We just sent Ryan to bed- he has to be at the hospital at 6am for his surgery tomorrow.  He wanted to wear his eyeball leggings, this kid, I tell you.  Such a trooper.  I took a quick picture of him before tucking him in, and I’m not going to lie- it’s killing me to […]